I want to tell you how thankful I am for those who support my fundraising efforts for ALS research and for them to know how grateful I am for their continued generosity.
I'm also thankful for the staff at the ALS Therapy Development Institute (ALS TDI). As I mentioned in my speech last month at their annual White Coat Affair in Boston, they have all made the decision to dedicate their lives to finding a cure for ALS so people like me don't have to lose their dad to the devastating disease.
With support of my efforts, ALS TDI has been able to enroll four ALS patients into their Precision Medicine Program, the largest of its kind in the world for ALS and the only one that allows patients and other researchers to access the data. The Institute uses the Program to sequence the genome of each enrolled patient by taking skin cell samples that are then turned into motor neuron cells, effectively recreating each person's version of ALS in the lab. This allows the Institute to see which treatments might be effective on each type of ALS, depending on that person's gene mutations.
On behalf of all of those who have lost a loved one to ALS, thank you.