Westport, Connecticut family spearheads ALS Pepper Challenge

Westport, Connecticut family spearheads ALS Pepper Challenge

On Oct. 18, Patty Haberstroh got news no person hopes to receive in her lifetime. She was diagnosed with amyotrophic lateral sclerosis, colloquially known as Lou Gehrig’s disease, a neuromuscular degenerative illness that causes muscle atrophy and the eventual loss of all voluntary muscle control.

When Haberstroh, a Westport resident since 1990, told her husband, Charlie, and their four children of the diagnosis, she said they were understandably upset, but vowed do something and felt they could make a difference in fighting the disease.

Catherine Wolf, Psychologist Who Studied Interaction Between People and Computers, Dies of ALS

Catherine Wolf, Psychologist Who Studied Interaction Between People and Computers, Dies of ALS

Catherine Wolf, an experimental psychologist whose research focused on enhancing interactions between humans and computers — and who, after illness left her paralyzed, relied on her laptop to communicate, using a system that let her wiggle an eyebrow to pick out letters — died on Feb. 7 at her home in Katonah, N.Y. She was 70.

For Paul Rinderknecht, living with ALS, a 'right to try' is a chance to live

For Paul Rinderknecht, living with ALS, a 'right to try' is a chance to live

Paul Rinderknecht can walk, still, yet each step is labored. His right fingers curl into his palm. A machine keeps him breathing through the night.

Two years with Lou Gehrig’s disease has taken much. But terminal illness also forged a purpose: To see a day when he can exercise the right to bet his life.

Mariemont, Ohio lacrosse coach leads fight against Lou Gehrig's disease

Mariemont, Ohio lacrosse coach leads fight against Lou Gehrig's disease

Former All-American Graham Harden, diagnosed with Lou Gehrig's disease in 2016, has been sharing his lacrosse skills by coaching both boys and girls lacrosse at Mariemont High School. He hopes to step back on the field this spring as coach. "If I don't show them that I can fight it, why would they do that on the field?" Harden asked.

Freezin' for a reason: Valentine Plunge in New Jersey raises money to support people with ALS

Freezin' for a reason: Valentine Plunge in New Jersey raises money to support people with ALS

With the wind chill making it feel like 14 degrees on the beach on Saturday, February 4 and the ocean temperature a shockingly cold 42 degrees, the brave souls who participated in Saturday's Valentine Plunge in Manasquan, New Jersey gambled and lost. But the Joan Dancy and PALS Foundation that works on behalf of people with Lou Gehrig's Disease came out the winner.

A Homecoming: Augie Nieto returns to Life Fitness, the company he created

A Homecoming: Augie Nieto returns to Life Fitness, the company he created

September 16 was a warm and sunny day in Franklin Park, Illinois, when Augie and Lynne Nieto arrived at the Life Fitness factory there.

It had been nearly 16 years since Augie, the cofounder and former chief executive of the company, had last entered the building, which had been its headquarters when he served as president.

Steve Gleason six years after ALS diagnosis, "I am happy"

Steve Gleason six years after ALS diagnosis, "I am happy"

In the midst of adversity, Gleason found purpose pouring his energy into Team Gleason. Among other things, his non-profit organization helps people with similar diagnosis continue crucial communication through technology.

Gleason and his wife Michel also used technology to preserve memories of their journey for their young son, Rivers. They soon realized their intimate family footage might benefit an audience beyond the three of them.

Durham architect battling ALS starts foundation for research, support

Durham architect battling ALS starts foundation for research, support

At any given time, 20,000 Americans battle amyotrophic lateral sclerosis, the degenerative neurological condition more commonly known as Lou Gehrig's disease. Renowned Durham architect Phil Freelon is one of them.

Just six months before Freelon’s most recent project, the Museum of African-American History and Culture, opened on the National Mall in Washington, D.C., he was diagnosed with ALS.

Pete Frates honored by NCAA

Pete Frates honored by NCAA

The Massachusetts man who inspired the Ice Bucket Challenge that's raised millions of dollars nationwide for ALS research is being honored at his home.

The NCAA hand-delivered an award to Pete Frates, the former Boston College baseball captain who touched off the national craze.

ALS Ice Bucket Part of Smithsonian’s ‘Giving in America’ Philanthropy Exhibit

ALS Ice Bucket Part of Smithsonian’s ‘Giving in America’ Philanthropy Exhibit

The Smithsonian’s National Museum of American History opened its long-term exhibition “Giving in America” on Nov. 29 to display the history of philanthropy’s role in shaping the United States. The collection includes one of the first buckets that tied the Ice Bucket Challenge to amyotrophic lateral sclerosis (ALS), which eventually went viral over social media.

Steve Gleason continues to inspire the world, even while suffering

Steve Gleason continues to inspire the world, even while suffering

Diagnosed with amyotrophic lateral sclerosis (ALS) - also called Lou Gehrig's disease or classical motor neuron disease - in 2011, Gleason has become a global activist and role model for sufferers of the disease and a modern-day hero to countless others inspired by his courageous fight.

Canadian MP Mauril Bélanger looses battle to ALS at 61

Canadian MP Mauril Bélanger looses battle to ALS at 61

Mauril Belanger, a Liberal member of Canadian Parliament for more than two decades and a lifelong advocate for francophone rights in English Canada, has died after a very public battle with an incurable neurodegenerative disease.